Contact
Find a TSC Organization
Please hover over the pins on the map or the use the complete list below the map to find contact information for the TSC organization in your area.
If there is not a TSC organization in your country, click here for information on how to start one.
All information listed in the map is also repeated below. Click one of the following letters to be directed to the corresponding country name.
A | B | C | D | E | F | G | H | I | J | K | L | M | N | O | P | Q | R | S | T | U | V | W | X | Y | Z |
Argentina
Asociación Argentina de Esclerosis Tuberosa (ARGET)
Email: asociacionarget@gmail.com
Websites: www.esclerosis-tuberosa.org and www.asociacionarget.blogspot.com.ar
Australia
Tuberous Sclerosis Australia (TSA)
Website: www.tsa.org.au
Email: info@tsa.org.au
Austria
Tuberöse Sklerose Complex Mitanand
Website: www.tuberoesesklerose.at
Email: info@tuberoesesklerose.at
Belgium
be-TSC
Website: www.betsc.be
Email: info@betsc.be
Brazil
Brazilian Association of Tuberous Sclerosis – Associação Brasileira de Esclerose Tuberosa (ABET)
Website: www.abet.org.br
Email: abetbh@gmail.com
Canada
Tuberous Sclerosis Canada Sclerose Tuberuse (TS Canada ST)
Website: www.tscanada.ca
Email: tscanadast@gmail.com
China
TSC China – 北京蝴蝶结结节性硬化症罕见病关爱中心
Website: www.tscchina.org
Email: info@tscchina.org
Denmark
Dansk Forening for Tuberøs Sclerose Heibergsvænge
Website: http://tsdanmark.dk
Email: formand@tsdanmark.dk
Finland
TS-YHDISTYS
Website: www.tuberoosiskleroosi.fi
France
French TSC association – Association française Sclérose tubéreuse de Bourneville (ASTB)
Website: www.astb.asso.fr
Email: contact@astb.asso.fr
Germany
German Tuberous Sclerosis Association (TSDe.V) – Tuberöse Sklerose Deutschland e.V.
Website: www.tsdev.org
Email: info@tsdev.org
Greece
Tuberous Sclerosis Association of Greece – Ελληνική Εταιρεία Οζώδους Σκληρύνσεως (Ε.Ε.Ο.Σ.)
Website: www.tsahellas.gr
Email: tsahellas@ath.forthnet.gr
Hungary
Hungarian Foundation for Tuberous Sclerosis
Website: www.tsc.hu
Email: info@tsc.hu
Hong Kong
Tuberous Sclerosis Complex Association of Hong Kong – 香港結節性硬化症協會
Email: tscahk0515@gmail.com
India
TS Alliance of India
Website: http://tsa-india.org
Email: info@tsa-india.org
Ireland
TSC Ireland
Website: www.tscireland.org
Email: tscireland@outlook.com
Israel
Tuberous Sclerosis Alliance of Israel (TS Alliance of Israel) – העמותה הישראלית לטוברוס סקלרוזיס
Website: www.tsc.org.il
Email: mail@tsc.org.il
Italy
Tuberous Sclerosis Association, Italy – Associazione Sclerosi Tuberosa (AST, AST-ONLUS)
Website: www.sclerosituberosa.org
Email: info@sclerosituberosa.org
Japan
The Japanese Society of Tuberous Sclerosis Complex
Website: http://tscres.org
Email: tscres@juntendo.ac.jp
Macedonia
Dajte ni krilja
Institute of Radiotherapy and Oncology Skopje
Website: www.dajtenikrilja.mk
Mexico
TS Alliance of Mexico
Website: www.tsallianceofmexico.com
Email: tsalliancemexico@gmail.com
Netherlands
Tuberous Sclerosis Netherlands Foundation – Stichting Tubereuze Sclerosis Nederland (STSN)
Website: www.stsn.nl
Email: info@stsn.nl
New Zealand
Tuberous Sclerosis Complex New Zealand (TSCNZ)
Website: www.tsc.org.nz
Email: info@tsc.org.nz
Norway
Norsk forening for Tuberøs Sklerose
Website: www.nfts.no
Email: post@nfts.no
Poland
Stowarzyszenie Chorych na Stwardnienie Guzowate
Website: www.stwardnienie-guzowate.eu
Email: stowarzyszenie.stw.guz@wp.pl
Portugal
The Portuguese Tuberous Sclerosis Association – Associação de Esclerose Tuberosa em Portugal (AETN)
Website: www.esclerosetuberosa.org.pt
Email: info@esclerosetuberosa.org.pt
Romania
Asociația Învingem Sindromul Bourneville (AISB)
Email: contact@tscromania.ro
Website: https://tscromania.ro/
Russia
Association of patients with tuberous sclerosis – Ассоциация больных туберозным склерозом
Email: tsc.rus@mail.ru
Website: http://epileptologhelp.ru/about/association-of-patients-with-tuberous-sclerosis
Serbia
Tuberous Sclerosis Association of Serbia – Udruženje za tuberoznu sklerozu Srbije
Email: 2013utss@gmail.com
Slovakia
ASTUS – Asociácia tuberóznej sklerózy (ASTUS, n.o.)
Website: www.diagnozatsc.sk
Email: astus@astus.sk or info@diagnozatsc.sk
Spain
Spanish Tuberous Sclerosis Association – Asociación Nacional de Esclerosis Tuberosa
Website: www.esclerosistuberosa.org
Email: esclletuber10@gmail.com
South Africa
Tuberous Sclerosis South Africa (TSSA)
Email: rehana.effendi@uct.ac.za
Sweden
TSC Sweden – TSC Sverige
Website: http://tsc-sverige.se
Email: tscsverige@gmail.com
Switzerland
STB Suisse
Website: www.stbsuisse.ch
Email: stbsuisse@postmail.ch
Taiwan
Taiwan Tuberous Sclerosis Complex Association (TTSC) – 台灣結節硬化症協會
Website: www.ttsc.org.tw
Email: tscare@gmail.com
Ukraine
Non-governmental Organization All-Ukrainian Aid Association for People with Tuberous Sclerosis
website: www.tuberoussclerosis.com.ua
email: tscukraine@gmail.com
United Kingdom
Tuberous Sclerosis Association (TSA)
Website: www.tuberous-sclerosis.org
Email: social@tuberous-sclerosis.org
United States
Tuberous Sclerosis Alliance (TS Alliance)
Website: www.tsalliance.org
Email: info@tsalliance.org