New TSCi Publication on Improving Healthcare for People with TSC Around the World

TSC International is proud to present the publication, “Beyond the Guidelines: How We Can Improve Healthcare for People with Tuberous Sclerosis Complex from Around the World,”  featured in Pediatric Neurology. This paper examines the state of TSC care around the world, identifies gaps in TSC care and makes recommendations for how TSC organizations and key stakeholders can work together to overcome barriers in TSC care. This publication is part of TSCi’s Improving Care Project looking at global TSC care, and provides the patient organizations’ perspective on the new TSC Clinical Consensus Guidelines.

Read the Paper