International TSC Clinical Consensus Conference Recommendations (PDF)

Peer-Reviewed, Published TSC Clinical Consensus Articles

The following papers are available free of charge with open access to anyone in the world.  TSCi encourages sharing these articles with healthcare providers. 

• Northrup, H., et al., Tuberous Sclerosis Complex Diagnostic Criteria Update: Recommendations of the 2012 International Tuberous Sclerosis Complex Consensus Conference Pediatric Neurology (October 2013)
• Krueger, D.A., et al., Tuberous Sclerosis Complex Surveillance and Management: Recommendations of the 2012 International Tuberous Sclerosis Complex Consensus Conference Pediatric Neurology (October 2013)
• Roth, J., et al., Subependymal Giant Cell Astrocytoma: Diagnosis, Screening, and Treatment.  Recommendations From the International Tuberous Sclerosis Complex Consensus Conference 2012 Pediatric Neurology (December 2013) 
• Leclezio L et al. Pilot Validation of the Tuberous Sclerosis-Associated Neuropsychiatric Disorders (TAND) Checklist, Pediatric Neurology (January 2015)  
• deVries PJ et al. Tuberous Sclerosis Associated Neuropsychiatric Disorders (TAND) and the TAND Checklist, Pediatric Neurology (January 2015) 
• Hinton RB et al. Cardiovascular manifestations of tuberous sclerosis complex and summary of the revised diagnostic criteria and surveillance and management recommendations from the international tuberous sclerosis consensus group. J Am Heart Assoc. (Nov 2014).   
• Teng JMC et al. Dermatologic and Dental Aspects of the 2012 International Tuberous Sclerosis Complex Consensus Statements, JAMA Dermatology (October 2014)

Upcoming Meetings

September 13-15, 2018: International TSC Research Conference, Tokyo, Japan

October 19-20, 2018: Disseminating Expertise and Achievement (DEA) Meeting, Leuven, Belgium: E-TSC and be-TSC are hosting an DEA Pitstop educational meeting for clinicians in Leuven, Belgium. This meeting will focus on neurology, the EPISTOP project, and TSC-Associated Neuropsychiatric Disorders (TAND). The second day of the meeting will also be open to individuals with TSC and their families, caretakers and other professionals. The additional information and agenda for the meeting can be found here. To register for the meeting or for any questions, please email info@e-tsc.eu. 

November 2020: UK International TSC Research Conference. Register for the mailing list by emailing admin@tuberous-sclerosis.org.

Webinars and Videos

TS Alliance (USA) TSC Research Webinar Recording Archives 

2014 World TSC Conference Session Videos 

TSC Associated Neuropsychiatric Disorders (TAND) Introduction