International TSC Clinical Consensus Conference Recommendations (PDF)

Peer-Reviewed, Published TSC Clinical Consensus Articles

The following papers are available free of charge with open access to anyone in the world.  TSCi encourages sharing these articles with healthcare providers. 

• Northrup, H., et al., Tuberous Sclerosis Complex Diagnostic Criteria Update: Recommendations of the 2012 International Tuberous Sclerosis Complex Consensus Conference Pediatric Neurology (October 2013)
• Krueger, D.A., et al., Tuberous Sclerosis Complex Surveillance and Management: Recommendations of the 2012 International Tuberous Sclerosis Complex Consensus Conference Pediatric Neurology (October 2013)
• Roth, J., et al., Subependymal Giant Cell Astrocytoma: Diagnosis, Screening, and Treatment.  Recommendations From the International Tuberous Sclerosis Complex Consensus Conference 2012 Pediatric Neurology (December 2013) 
• Leclezio L et al. Pilot Validation of the Tuberous Sclerosis-Associated Neuropsychiatric Disorders (TAND) Checklist, Pediatric Neurology (January 2015)  
• deVries PJ et al. Tuberous Sclerosis Associated Neuropsychiatric Disorders (TAND) and the TAND Checklist, Pediatric Neurology (January 2015) 
• Hinton RB et al. Cardiovascular manifestations of tuberous sclerosis complex and summary of the revised diagnostic criteria and surveillance and management recommendations from the international tuberous sclerosis consensus group. J Am Heart Assoc. (Nov 2014).   
• Teng JMC et al. Dermatologic and Dental Aspects of the 2012 International Tuberous Sclerosis Complex Consensus Statements, JAMA Dermatology (October 2014)

Upcoming Meetings

November 3-5, 2016:  2016 International TSC Research Conference, Portugal
View the conference program. Registration for the conference is €300 (discounted to €220 for graduate-level and post-doctoral trainees, or junior faculty members) through September 14, 2016 and €380 on or after September 15, 2016 until October 26, 2016. The Lisbon Marriott hotel is the official hotel of the conference and booking should be made online.  Please contact either Ana Montes at ana.montes@admedic.pt or Micaela Rozenberg at tsclisbon2016@gmail.com with any questions.

November 6, 2016: TSC Family Meeting, Portugal 

Webinars and Videos

TS Alliance (USA) TSC Research Webinar Recording Archives 

2014 World TSC Conference Session Videos 

TSC Associated Neuropsychiatric Disorders (TAND) Introduction